The RESULTS of the 2026 Independence Day parade!

Our home now houses not one but TWO big movie stars! This last week, Damian and I got to attend our first film festival, the Marina Del Rey Film Festival, where Damian was featured in a documentary called “The Flying Hero Club: Behind the Smiles.” If you were around last year, you may remember when Damian (and Brock and I) got the incredible opportunity to fly on a real movie stunt rig just like superheroes! There were a lot of cameras rolling that day to capture Damian and s

Ladies and gentlemen, boys and girls, it’s TIME to start the craziest, craftiest, fundraisiest half of the year – starting with a parade of epic proportions! The 2026 Fourth of July parade!! Each year we have participated in our city’s parade we have been able to pass out about 1,000 flyers telling our local community our story: about Damian, our ambition to treat his disease and save his life, and ask for help! Every year I have spent anywhere from 2 weeks to 1 month paper m

We had a lofty fundraising goal to reach in May! Here's all the stats for how we did!

My little love, You are such a big boy now! Seven years old! I'm excited for you to finish sleeping so we can have fun doing all of your favorite things - we will snuggle on the "Fiffer-feffer-feff" (what we call our big couch) while we read as many books as you want. We'll of course make sure to read a bunch of Dr. Seuss books and ones with Mickey Mouse in them. Next we'll sit up at the piano and you can play (and I can play next to you if you want, you have always liked sit

A couple of weeks ago, I was pushing Damian in his stroller while walking home from Church. I absolutely love walking to and from church this time of year because most of the homes we walk past cover their front yards in rose bushes and this is the time of year they all bloom! It's BEAUTIFUL! To add to the beauty, on this particular Sunday I noticed so many more birds singing than I normally hear. It was so loud that for a moment I just stopped walking and listened. Oh my goo

Happy New Year! Some people get their holiday cards out (digitally or physically) before Christmas, but not us! We just wrapped up Damian's Christmas Village this past weekend though, so I think we are more than justified, haha. Our last in-person fundraising event of 2025 went so well, I couldn't be more pleased! I reviewed all the specifics in my last post , but today's is our annual family newsletter! It sometimes feels a little silly talking generally about our year (beca

Our 9-night run of Damian's Christmas Village has concluded and with that, 2025 is coming to a close! Our latest fundraiser event was SO magical! I didn't quite get everything built that I had planned on , but we definitely succeeded in "plussing it up" from last year's version and that was my main goal! This post contains affiliate links, meaning I may earn a commission if you click a link and then purchase something What was NEW this Year Peppermint Mickey Unfortunately las

I'm SO excited today (appropriately on Giving Tuesday) to announce my plans for our final fundraiser event for 2025! Last year was our first time doing Damian's Christmas Village and it was such a big push to get it done, but a BIG help this year has been the ability to build off of everything I made last year, rather than start completely from scratch. A lot of cleaning and touching up has been required so far, but everything is going up MUCH quicker! And just like our Hallo