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Chugging towards the 2026 parade!
Ladies and gentlemen, boys and girls, it’s TIME to start the craziest, craftiest, fundraisiest half of the year – starting with a parade of epic proportions! The 2026 Fourth of July parade!! Each year we have participated in our city’s parade we have been able to pass out about 1,000 flyers telling our local community our story: about Damian, our ambition to treat his disease and save his life, and ask for help! Every year I have spent anywhere from 2 weeks to 1 month paper m
brittanymarkham
Latest Blog Post:
Hi, Brittany (Damian's Mom) here! Damian's story is being told across multiple platforms in an attempt to reach the largest audience. I post a lot of content on these other platforms and it is all very shareable!! Please join our community on whichever platforms you're on to help us spread the word! THANK YOU!
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Damian is vegan now
I usually end my posts with a disclaimer, but in this case I am going to start my post with one: As a reminder, I am not a doctor. I do...
brittanymarkham
Jul 16, 20238 min read
Sneak Peak at our Parade Concept!
If you were around last year, you may remember we participated in our city's annual Independence Day parade! For our float, I made a huge...
brittanymarkham
Jun 16, 20232 min read
"You're Doing a Great Job, Mama"
Moms, let's all be honest - isn't motherhood the hardest thing we've ever done? I come from a family of 9 children and when I asked my...
brittanymarkham
May 14, 20234 min read
Damian just got a feeding tube
I'm sooooooo glad we were discharged on a Friday and had the weekend where we could just—well—I was going to say recharge, but honestly,...
brittanymarkham
Apr 3, 20238 min read
One Step Closer to a Feeding Tube
A little backstory: Damian's liver and spleen are about 10x the normal size due to his disease (ASMD) and have been squishing Damian's...
brittanymarkham
Mar 19, 20238 min read
WE DID IT!!!! WE REACHED $1 MILLION!!!
EEEEEEEEEEK! We've been trying to reach $1 million in funds raised for our campaign for a long while and I knew we could finally do it by...
brittanymarkham
Mar 4, 20235 min read
We are about to hit $1 MILLION!!!!
Happy Rare Disease Day INDEED!!!! We had a goal this month to finally hit $1 million in total fundraising for our campaign and we very...
brittanymarkham
Feb 28, 20233 min read
9 Months on the "Brain 1.0" Treatment!
Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...
brittanymarkham
Feb 1, 20237 min read
My abstract ambition for 2023
For several years I have set time aside to come up with New Year's resolutions, but I've noticed that I'm much more successful and feel...
brittanymarkham
Jan 11, 20234 min read
Happy New Year from the Markham Family!
Our Annual Family Newsletter of 2022 Events Happy New Year, everyone! I just reread our annual family newsletter from last year and I am...
brittanymarkham
Jan 3, 20235 min read
We started ERT!!!! And then went to the ER...
Not exactly how we envisioned Christmas panning out this weekend. But let's take it from the top: We had our start date for Enzyme...
brittanymarkham
Dec 28, 20228 min read
Praying hard for our Christmas wish!
Who would've thought we'd have more issues with starting Enzyme Replacement Therapy after I sent an infuriated email to the CEO of...
brittanymarkham
Dec 19, 20227 min read
How to help #SaveDamian during the holidays!
Thanksgiving is this week! And Christmas is next month! EEEK, can you believe it?? The fact is: there has never been a better time, nor...
brittanymarkham
Nov 22, 20223 min read
The 3 Treatments for ASMD (& why Damian needs them)
This past week we gave Damian his 100th dose of his first-ever experimental treatment for ASMD and I could not be more grateful!!!...
brittanymarkham
Nov 14, 20229 min read
Is the end of the ERT drama in sight???
Hope you all had a fabulous Halloween (it was ONLY a week ago, can you believe it? So pardon me, but I'll be posting some fall photos...
brittanymarkham
Nov 7, 20225 min read
Damian's BACK in therapy!
You might remember (or not!) that earlier this year I was having an emotional time in the days leading up to Damian's 3rd birthday (it...
brittanymarkham
Aug 29, 20225 min read
I'm furious... What. HAPPENED?!?!
August 1st was going to be such a BIG day. I was very nervous: starting a new treatment meant taking the risk of dealing with an allergic...
brittanymarkham
Aug 12, 202210 min read
3 Months on the Treatment & Starting PHASE 2!!!
Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...
brittanymarkham
Jul 27, 20225 min read
Damian and I are "Influencers" now??
Damian and I have been attending every big gathering and city event we can possibly go to to help spread our story. And I am humbled to...
brittanymarkham
Jul 23, 20226 min read
Damian is going to be in a PARADE!!!
You didn't think that just because we didn't make our million dollar milestone by May 24th we were going to give up fundraising, did...
brittanymarkham
Jun 17, 20223 min read
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