Please Save Damian

Prepping for Damian's Christmas Village 2025!

I'm SO excited today (appropriately on Giving Tuesday) to announce my plans for our final fundraiser event for 2025! Last year was our first time doing Damian's Christmas Village and it was such a big push to get it done, but a BIG help this year has been the ability to build off of everything I made last year, rather than start completely from scratch. A lot of cleaning and touching up has been required so far, but everything is going up MUCH quicker! And just like our Hallo

brittanymarkham

Latest Blog Post:

Hi, Brittany (Damian's Mom) here! Damian's story is being told across multiple platforms in an attempt to reach the largest audience. I post a lot of content on these other platforms and it is all very shareable!! Please join our community on whichever platforms you're on to help us spread the word! THANK YOU!

We are about to hit $1 MILLION!!!!

Happy Rare Disease Day INDEED!!!! We had a goal this month to finally hit $1 million in total fundraising for our campaign and we very...

brittanymarkham

Feb 28, 20233 min read

9 Months on the "Brain 1.0" Treatment!

Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...

brittanymarkham

Feb 1, 20237 min read

My abstract ambition for 2023

For several years I have set time aside to come up with New Year's resolutions, but I've noticed that I'm much more successful and feel...

brittanymarkham

Jan 11, 20234 min read

Happy New Year from the Markham Family!

Our Annual Family Newsletter of 2022 Events Happy New Year, everyone! I just reread our annual family newsletter from last year and I am...

brittanymarkham

Jan 3, 20235 min read

We started ERT!!!! And then went to the ER...

Not exactly how we envisioned Christmas panning out this weekend. But let's take it from the top: We had our start date for Enzyme...

brittanymarkham

Dec 28, 20228 min read

Praying hard for our Christmas wish!

Who would've thought we'd have more issues with starting Enzyme Replacement Therapy after I sent an infuriated email to the CEO of...

brittanymarkham

Dec 19, 20227 min read

How to help #SaveDamian during the holidays!

Thanksgiving is this week! And Christmas is next month! EEEK, can you believe it?? The fact is: there has never been a better time, nor...

brittanymarkham

Nov 22, 20223 min read

The 3 Treatments for ASMD (& why Damian needs them)

This past week we gave Damian his 100th dose of his first-ever experimental treatment for ASMD and I could not be more grateful!!!...

brittanymarkham

Nov 14, 20229 min read

Is the end of the ERT drama in sight???

Hope you all had a fabulous Halloween (it was ONLY a week ago, can you believe it? So pardon me, but I'll be posting some fall photos...

brittanymarkham

Nov 7, 20225 min read

Damian's BACK in therapy!

You might remember (or not!) that earlier this year I was having an emotional time in the days leading up to Damian's 3rd birthday (it...

brittanymarkham

Aug 29, 20225 min read

I'm furious... What. HAPPENED?!?!

August 1st was going to be such a BIG day. I was very nervous: starting a new treatment meant taking the risk of dealing with an allergic...

brittanymarkham

Aug 12, 202210 min read

3 Months on the Treatment & Starting PHASE 2!!!

Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...

brittanymarkham

Jul 27, 20225 min read

Damian and I are "Influencers" now??

Damian and I have been attending every big gathering and city event we can possibly go to to help spread our story. And I am humbled to...

brittanymarkham

Jul 23, 20226 min read

Damian is going to be in a PARADE!!!

You didn't think that just because we didn't make our million dollar milestone by May 24th we were going to give up fundraising, did...

brittanymarkham

Jun 17, 20223 min read

1 MONTH on the treatment: my report :)

As of May 22nd, 2022, Damian has officially been taking the first of the experimental treatments we've been able to access for ONE WHOLE...

brittanymarkham

May 31, 20226 min read

8 doses in... is the treatment working yet???

WOW, it is great to be on the other side of the treatment approvals!!!! As of Friday, Damian has taken the experimental treatment 8 times...

brittanymarkham

May 16, 20225 min read

A Mother's Day Message from Brock

Written by Brock Markham (Damian's Dad) I wasn't home with Brittany and Damian when she got the call of Damian's diagnosis in March of...

brittanymarkham

May 8, 20223 min read

The FDA approved our treatment!!! WE START TOMORROW!!!

I CANNOT TELL YOU HOW EXCITED I AM!!!!! I COULD SCREAM!!!! IN FACT, I WILL!!!! AAAAAAAHHHHHHHHHHHH!!!!!!!! You all know how long we have...

brittanymarkham

Apr 21, 20225 min read

How to Share Damian's Story Online

What a BLESSING it is that I am getting asked so often right now about how to best share Damian's story online!! Thank you all so so much...

brittanymarkham

Mar 31, 20228 min read

"Mama Bear Brittany" came out this week... A LOT

For weeks and weeks I had been planning my next blog update: "FINALLY we have a start date," "ANNOUNCING: The news we've all been waiting...

brittanymarkham

Mar 20, 20227 min read