Please Save Damian

BIG GOALS for Damian's Not-So-Haunted House: 2025 Edition!

Our "0% Scary, 100% Halloween Fun" walkthrough experience has been a favorite project of mine ever since we first made it in 2023 - can...

brittanymarkham

Latest Blog Post:

Hi, Brittany (Damian's Mom) here! Damian's story is being told across multiple platforms in an attempt to reach the largest audience. I post a lot of content on these other platforms and it is all very shareable!! Please join our community on whichever platforms you're on to help us spread the word! THANK YOU!

Damian has begun having seizures

It's been awhile since my last comprehensive Damian update. Let's catch up.

brittanymarkham

Mar 26, 202411 min read

The sweetest Rare Disease Month!

Happy first week of March! We just wrapped up the shortest month of the year, which also happened to be Rare Disease Month, and I am so...

brittanymarkham

Mar 5, 20245 min read

We met the developers of Damian's treatment!

If you follow my Instagram stories, you'll know we have spent a bunch of time in San Diego this month. A week ago some friends of ours...

brittanymarkham

Feb 12, 20247 min read

BILLBOARDS & ad revenue!

Did I mention Damian is on a BILLBOARD??? When we drove down to Arizona just before Thanksgiving to go to the Wylder Nation Foundation...

brittanymarkham

Jan 30, 20243 min read

Happy New Year from the Markham Family!

Happy New Year!! January 8th is officially the first day of the year, right? I'm pretty sure all the other days from December 26th to...

brittanymarkham

Jan 8, 20244 min read

Our December fundraiser starts TUESDAY!

Ok, I have kept you in the dark long enough! It's time to announce what we're doing for our December fundraiser!! It's online! After the...

brittanymarkham

Dec 8, 20233 min read

THE RESULTS of Damian's Not-So-Haunted House!

Happy November everyone! What an absolute whirlwind the last two months have been creating and opening and operating our latest crazy...

brittanymarkham

Nov 6, 20235 min read

Make your own "Not-So-Haunted" stretching portrait!

Our "not-so-haunted" house designs are well on their way and I am so excited to share the progress!! In my last blog post I shared all...

brittanymarkham

Sep 14, 20233 min read

OUR NEXT BIG PROJECT!!!

Buckle up and keep your hands, arms, feet and legs inside the vehicle! This next month and a half is going to be a wild ride. I can't...

brittanymarkham

Sep 3, 20235 min read

Treatment Update: Brain 2.0 & MORE

Phew, what a busy (and exciting) summer it's been! With so many fundraising events going on, from the 4th of July parade to the Taylor...

brittanymarkham

Aug 30, 20239 min read

TAYLOR SWIFT WEEK: How it went!!!

Oh my goodness, what a WEEK!!! In the off-chance you haven't heard about the absolute mania we've been in for the past month preparing to...

brittanymarkham

Aug 15, 202312 min read

Our next project: Taylor Swift! (help wanted)

I can't believe I'm writing this: I am going to the Eras Tour. EEEEEEEK!!!! A few weeks ago, I got the **surprise of the summer** when I...

brittanymarkham

Jul 20, 20234 min read

Damian is vegan now

I usually end my posts with a disclaimer, but in this case I am going to start my post with one: As a reminder, I am not a doctor. I do...

brittanymarkham

Jul 16, 20238 min read

Sneak Peak at our Parade Concept!

If you were around last year, you may remember we participated in our city's annual Independence Day parade! For our float, I made a huge...

brittanymarkham

Jun 16, 20232 min read

"You're Doing a Great Job, Mama"

Moms, let's all be honest - isn't motherhood the hardest thing we've ever done? I come from a family of 9 children and when I asked my...

brittanymarkham

May 14, 20234 min read

Damian just got a feeding tube

I'm sooooooo glad we were discharged on a Friday and had the weekend where we could just—well—I was going to say recharge, but honestly,...

brittanymarkham

Apr 3, 20238 min read

One Step Closer to a Feeding Tube

A little backstory: Damian's liver and spleen are about 10x the normal size due to his disease (ASMD) and have been squishing Damian's...

brittanymarkham

Mar 19, 20238 min read

WE DID IT!!!! WE REACHED $1 MILLION!!!

EEEEEEEEEEK! We've been trying to reach $1 million in funds raised for our campaign for a long while and I knew we could finally do it by...

brittanymarkham

Mar 4, 20235 min read

We are about to hit $1 MILLION!!!!

Happy Rare Disease Day INDEED!!!! We had a goal this month to finally hit $1 million in total fundraising for our campaign and we very...

brittanymarkham

Feb 28, 20233 min read

9 Months on the "Brain 1.0" Treatment!

Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...

brittanymarkham

Feb 1, 20237 min read